Jet
fighting Hepatoblastoma
WISH: When I was a kid, I wasn't sure what I wanted to do or who I wanted to be. I tried out many different hobbies such as karate, BMX, drumming, tennis and fencing, but the one that always stuck with me was airplanes. I built and flew model planes, made every school assignment I could about them, and researched from the Wright brothers up to the present about anything that graced the skies.
During my last year of high school, I decided I needed to do something with airplanes. I started looking into colleges and flight schools, but I didn't have any money. My family wasn't poor, but I knew I'd need to take out loans if I wanted further education. So I turned my attention to the military. There are plenty of military programs to pay for school, but I had also grown tired of studying and doing schoolwork at this point. I just wanted to do something with my life. My family has a rich military history, and I loved the idea of serving my country, protecting my loved ones, and traveling the world, not to mention free school, so the Air Force was an obvious choice.
When I enlisted, I didn't care which job they gave me as long as it had something to do with airplanes, but I wouldn't find out my assignment until I completed basic training. When I found out I'd be working on F-16 fighter jets, my favorite out of all modern aircraft, it was like a dream come true.
Throughout training I got to learn about the inner workings of the most badass plane to ever exist. At my first duty station, Nellis Air Force Base in Las Vegas, I fell in love with the fast paced, high stress, lives on the line job that is being a Crew Chief. We inspect the jets, make sure they're safe to fly, and fix any problems that arise on the ground or in flight. I grew to love the hard work, long days, and punishing maintenance, as well as lifting weights after work, doing my best to be as healthy and strong as I could.
At my second duty station in Spangdahlem, Germany, I was finally able to start traveling. Sometimes for pleasure, but mostly on the Air Force's dime. I went to Romania, Portugal, France, Iceland, and many more places, the whole time honing my skills to be the best I could be. In Portugal this was recognized and I was given the opportunity to fly in the back seat of one of our jets. I still look back fondly on that as the best day of my life. Another dream came true, and this time it wasn't by chance, I had earned it.
I kept working hard and seizing every opportunity offered to me, the most recent being a trip to Iceland. We worked hard, but also took time to explore the island, seeing a ton of cool places and spending time with my friends who had grown to be more of a family. During the last three days of the trip, we were packing up our equipment and getting ready to get ourselves and the jets back home to Germany. I noticed a pain in my side similar to a runner's stitch, but I had a job to do and I couldn't afford to look weak. Over the next few days this pain in my side grew until it was almost unbearable.
The night we got back to Germany I went straight to the ER, which was luckily only a couple blocks from my apartment. They did an ultrasound of my abdomen, after which they determined something was wrong with my liver and asked me to come back the next day for more tests. Another ultrasound and an MRI later, I was informed I have a giant tumor on my liver about 11 cm in diameter. When I called my mom to tell her, she immediately booked a flight all the way from Wisconsin. During the weekend the hospital held me, my good friend, mentor, and supervisor, SSgt Cole McGriff came to visit me every night. He would bring me sushi and other meals and kept me company well past visiting hours.
When my mom arrived, we had a consultation with a surgeon who explained where my tumor was and what his plan would be to remove it. From there, we decided to get a second opinion at Landstuhl Army Hospital, where they referred us to Walter Reed National Military Medical Center. Sergeant McGriff gave us a ride back to Landstuhl a few days later, where we then bussed to Ramstein Air Base to take a C-17 all the way to Maryland where WRNMMC is.
At Walter Reed, I received another battery of tests, scans, and evaluations. My surgeon, Dr. Jamie Robinson, and her team came up with a surgical plan to remove the tumor along with about 70% of my liver. The liver would regrow, and I'd be cancer free in just a few weeks. The surgery went smoothly, and I was out of the hospital in 3 days. At this point my dad had taken time off work and came to Maryland to be with me and my mom. He helped me walk up and down the halls of the room we were given, in and out of the car, and even showering.
My incision stretched from my sternum all the way down and around to my right hip, with 64 staples holding me together. The recovery was painful, it was hard to sleep at night, and the pain meds I was prescribed gave me a foggy feeling I disliked, but hey I had beaten cancer, and that was worth all the pain and suffering. I still had about 6 weeks of recovery time left, the oncologist said chemo is rarely effective against this type of cancer, and we got clear margins during the surgery anyway, so I petitioned to go home to Wisconsin to finish out recovery, then go back to Germany when I was clear to do so.
Fast forward 5 weeks and I'm getting ready to get back to my life, when the phone rings. I answered it to hear my oncologist on the other end telling me that they were wrong about which type of cancer I had, and that I should start chemo right away to make sure it doesn't come back. He wanted me to come back to Maryland for 6 months of treatments, to which I responded "Absolutely not." The university hospital near me and is fantastic and nationally ranked at treating cancer, not to mention the multiple studies that show better survival rates for patients with support systems. I would not leave my family. Thankfully the Air Force was sympathetic and let me stay here. The team at WRNMMC sent all my files over to UW Children's Hospital because my tumor is generally seen in babies, so the adult hospital isn't as well equipped to deal with it.
I met with the team at UWAFCH, who is absolutely amazing and headed by my oncologist, Dr. Therese Woodring. She explained how the treatments would work, that I needed an implant called a "port" to administer it, and reassured us about the whole process. I was never worried for a second, I had already beaten cancer and this was just a precaution to ensure it doesn't come back. I'm a strong guy mentally, physically, spiritually, and emotionally, but nothing could have prepared me for the gut punch that was Dr. Woodring explaining to me that the cancer is not only already back in my liver just 7 weeks after resection, but that it's spread to my lungs as well. For the first time, cancer started fighting back. The chemo wasn't a precaution anymore, it along with a complete liver transplant and resection of the nodules in my lungs is my only chance at survival.
Chemotherapy, for lack of a better word, sucks. It's harder than I could have ever imagined. The treatment started with a cycle of once a week for 3 weeks, followed by one week of rest. Every week I was bombarded with fatigue, weakness, headaches, and worst of all nausea. I had plenty of medicine for it, but it never fully went away. I felt like I couldn't eat anything, but it only got worse when my stomach was empty, so I forced myself to eat. The days of and following my treatments are excruciating, but those that are manageable I do everything to make the most of. I host shooting days in my backyard, invite family and friends to dinners, and play lots of Magic: The Gathering.
After the first 3 months of treatments the cycles ease up a bit, to one treatment every 3 weeks, but now there are some new side effects, the worst of which is numbness in my hands and feet. The chemo is working according to my scans, and eventually it's time to get back under the knife to take care of my lungs. The liver transplant team won't operate on me until my lungs have been clear of disease for 6 months. The thought of another 2 surgeries is daunting, but I know it must be done, so I grit my teeth and push onward.
The lung surgery was less invasive than the liver one, but chest tubes are awful. It hurt to breathe, and my ribs are still recovering from the tubes rubbing against them. I get out of the hospital in 3 days, just in time for the 4th of July. Once again, during my recovery I get a phone call, only this time it's from Dr. Woodring. I brace myself for more bad news, but as she tells me the pathology report following my lung surgery shows no signs of cancer, I race downstairs to my mom and have Dr. Woodring repeat the whole thing. Finally, something is going right. Now there's potential to do the liver transplant sooner than expected.
Currently I'm waiting for the transplant team to review my case again and get back to me. My future is still very uncertain, and I don't know if I can ever go back to the life I came from, but I'm of the opinion that the only way to get stronger is to do stuff that sucks. This battle is just another opportunity for me to overcome a challenge, grow, learn, persevere, and get stronger. I've never gone down without a fight, and nothing has ever kept me down for long. I don't intend to change that anytime soon. I'm making cancer my bitch, and I can't thank my friends, family, and girlfriend enough for being there to support me through it.
What Nik's wish are you thinking about and why?
I have been playing Magic for almost 15 years. It's always been a great way for me to blow off steam and hang out with my friends and share some hilarious moments. Throughout this journey, magic has been my main respite from the chemo and has tremendously helped my mental stability. The guys I have met through it are incredibly supportive and make me forget I have cancer at times when we're gaming. My favorite youtube channel, The Command Zone has a gameplay series where they invite different guests onto the show to play on camera to publish the games. It would be super fun just to hang out with that team, get to know everyone and play magic with people who share my love and passion for the game, but my wish is to play magic on Game Knights with Jimmy Wong, Josh Lee Kwai, and my favorite streamer Kenji Egashira.